UK court sets new hearing in case of terminally ill baby

A British court on Monday gave the parents of 11-month-old Charlie Gard a chance to present fresh evidence that their terminally ill son should receive experimental treatment.

The decision came after an emotionally charged hearing in the wrenching case, during which Gard's mother wept in frustration and his father yelled at a lawyer.

Judge Nicholas Francis gave the couple until Wednesday afternoon to present the evidence and set a new hearing for Thursday in a case that has drawn international attention.

But the judge insisted there had to be "new and powerful" evidence to reverse earlier rulings that barred Charlie from traveling abroad for treatment and authorized London's Great Ormond Street Hospital to take him off life support.

"There is not a person alive who would not want to save Charlie," Francis said. "If there is new evidence I will hear it."

Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease that has left him brain damaged and unable to breathe unaided. His parents want to bring him abroad for experimental therapy, which they say offers their son a chance of improvement.

But British and European courts have sided with the hospital's decision that the 11-month-old's life support should end, saying therapy would not help and would cause more suffering.

The re-opening of the case at London's High Court may allow Charlie to receive the experimental treatment at his current hospital or abroad.

Great Ormond Street Hospital applied for another court hearing because of "new evidence relating to potential treatment for his condition."

The evidence came from researchers at the Vatican's children's hospital and another facility outside of Britain.

The application came after both Pope Francis and President Donald Trump fueled international attention to the case, with hospitals in Rome and the U.S. offering to provide Charlie the experimental therapy.

The case pits the rights of parents to decide what's best for their children against the authorities with responsibility for ensuring that people who can't speak for themselves receive the most appropriate care.

Under British law, it is normal for courts to intervene when parents and doctors disagree on the treatment of a child — such as cases where a parent's religious beliefs prohibit blood transfusions. The rights of the child take primacy, rather than the rights of parents to make the call.

Charlie's parents, Chris Gard and Connie Yates, have received wide public support, while right-to-life groups have intervened in their cause. Americans United for Life chief executive Catherine Glenn Foster was in London on Monday to support the couple.

"Today is a victory for poor Charlie and Chris and Connie over Great Ormond Street Hospital," Foster said after the judge ruled. "There is a tremendous amount of hope here."

A petition supporting Charlie's right to treatment has garnered around 350,000 signatures and more than 1.3 million pounds ($1.7 million) have been raised online for his case.

Charlie's parents were overcome with emotion during Monday's hearing. At one point, the baby's father, Chris Gard, yelled at a barrister representing the hospital: "When are you going to start telling the truth?"

The baby's mother, Connie Yates, added: "It's really difficult."

"He is our son. Please listen to us," she said.

Francis — who also ruled on an earlier chapter in the case — said everyone involved in the case wanted the best for Charlie. He rejected an attempt by the child's parents to have another judge hear the new evidence.

"I did my job," he said. "I will continue to do my job."

Before Monday's hearing, Connie Yates told Sky News that she wanted judges to listen to experts on her son's condition who say the treatment might help.

The mother said seven specialists from around the world have expressed support for continued treatment and told her it has an "up to 10 percent chance of working."

"I hope they can see there is more of a chance than previously thought and hope they trust us as parents and trust the other doctors," she said.

350,000 demand UK allow terminally ill baby to travel to US

The parents of a terminally-ill British baby boy on Sunday delivered a petition of over 350,000 signatures demanding they be allowed to take him to the United States from treatment.

Supporters joined 11-month-old Charlie's parents Connie Yates and Chris Gard outside London's Great Ormond Street hospital (GOSH), calling for him to be released so he can travel to the US for experimental treatment.

The hospital said on Friday it would let the courts re-examine claims that he could be treated, citing "fresh evidence" after US President Donald Trump and Pope Francis drew international attention to the case.

The courts had ruled that keeping the baby on life support would only prolong his suffering as there was no hope of him recovering from his extremely rare form of mitochondrial disease, which causes progressive muscle weakness, including in key organs such as the heart.

The case is expected to be heard on Monday.

Speaking outside the hospital, Yates said: "He's our son, he's our flesh and blood. We feel that it should be our right as parents to decide to give him a chance at life.

"There is nothing to lose, he deserves a chance," she added.

US Congressmen Brad Wenstrup and Trent Franks have called for Trump to give the baby US citizenship, and the @charliesfight Twitter campaign account re-tweeted a picture of the baby carrying the words "by executive order make me a US citizen."

GOSH had been due to withdraw life support for Gard after his parents lost appeals in British courts and the European Court of Human Rights.

"This is not an issue about money or resources, but absolutely about what is right for Charlie," said the hospital.

It said its doctors had "explored every medical treatment" and that further treatment "would be unjustified... and would prolong Charlie's suffering."

"Our view has not changed," it added.

Pope Francis last week expressed his support for the baby's parents and said he hoped doctors would allow them to "care for their child until the end".

A Vatican-run hospital in Rome then offered to treat Gard.

Trump also waded into the debate on Monday, tweeting that the United States "would be delighted" to help.

Mother Connie Yates maintains her son is "not in pain or suffering" and that "the support from the Pope and the President has given us hope."

"If he's still fighting, we're still fighting," she said.

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